Jordin’s Journey.
April 13, 2012

Okay, there is ONE last thing that I want to do before moving on to pregnancy stuff…I kind of, sort of want to tell you about a little girl named Jordin and the charity fundraiser that is being organized in her name.

You can read more about Jordin and what I am about to tell you by clicking through to the Jordin’s Journey website.  Jordin’s Journey also has a Facebook page which you can find by clicking here.  If you have time, I encourage you to look at both.  And if you have an extra cent or two lying about, please consider looking at the donation page.  Donations are pooled together to purchase an SES machine for the local children’s hospital.


Donald and I first met Jordin and her family at a Halloween party hosted by mutual friends.  Jordin is the youngest of three incredible children and she was feeling ill that evening.  She clung to her mother for most of the night, sipping water and cuddling.  “Jordin has sickle cell anemia,” her mother told me.  “It’s hard on her.”

I had heard of sickle cell anemia, of course, and I think most people have – but to me it was a very abstract disease.  Throughout the night, I just kept asking questions.  How is sickle cell managed?  Is she always in pain or ill?  What are the gravest dangers?  Were her other children carriers?  Are carriers ever symptomatic?

It was another year before I saw Jordin and her mother again (at another Halloween party OF COURSE) and by then I had done my research.  I learned about sickle cell anemia and so when her mother talked about a recent hospital stay, a lot more of the conversation made sense to me.  The whole ride home, Donald and I talked about how incredibly attentive her parents are to her needs.  Their children are lucky to have such strong advocates on their side.

That said, I have only met Jordin and her family a few times, always at our mutual friends’ home.  I don’t know what Jordin’s favorite color is or what she wants to be when she grows up, but when I recently discovered (through the same mutual friends) that her family is trying to raise money to purchase a machine for the local children’s hospital…I knew immediately that I wanted to help.

What is the point of having a blog, after all, if you cannot – or do not – ever use it to help someone else?

The machine that Jordin’s family wants to purchase for the children’s hospital is called a Sebia Electrophoresis System and it is used to scan blood.  Proximity is pretty key.  The closest SES machine to my location is currently situated in northern California, which means that families of children with rare blood disorders (including sickle cell, anemia, and hemoglobin diseases) in southern California are forced to wait a week or longer to receive test results that can significantly affect the well-being of their child.  While they spend a week waiting for a diagnosis, their child waits in limbo.

The SES machine ordinarily costs $58,000 but the company that manufactures it has agreed to sell the machine for $30,000.  And that is what Jordin’s Journey is all about: educating the public about the need to place an SES machine in southern California so that more families can see their children diagnosed and treated in reasonable frames of time…and raising $30,000 to do just that.  As of the moment that this post is going live, Jordin’s family has worked hard to raise $6,345.  That’s about 1/5 of the total moneys needed.

I know that nobody likes to be preached at and begged for money when they come to a happy-go-lucky parent blog, but I am asking you: please humor me, just this once.  If you have a little extra wiggle room in your budget, PLEASE consider donating to Jordin’s Journey to help make this machine a reality in southern California.  And if you don’t, you can still help.  You can post a link to Jordin’s Journey on your Facebook page or Twitter stream.  If you live in southern California, you can plan to attend the Jordin’s Journey black-tie event at the TGIF’s at The Block in Orange on April 20th.  If you have a blog, you can write about Jordin’s Journey or allow me to write a guest-post about it (in which case, I’ll link to it and beg people to click through, I promise).  If you have a business with an Internet shop – a photography business or an Etsy shop, for example – you can agree to pledge a percentage of your profits to Jordin’s Journey over a specified period of time.

Over the next few weeks, I will be making a point to feature blogs and businesses that help spread the word or pledge profits to this cause.  I already have a few lined up, but not many.  If you want to participate, PLEASE send an e-mail to so that I can include you.

And in advance: THANK YOU.  Thank you to each and every one of you who reads this for taking the time out of your day and thank you to anyone who has the inclination to help in whatever way they can.  Thank you.

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  1. By Courtney on April 13, 2012

    Might get in touch with FundRazr (easiest method is via Facebook @FundRazr Helper - Camara Cassin.)  She can help set up a FundRazr page to collect donations, and can also help get the word out on FB…  she’s raised a lot of money for a lot of little kids with a variety of diseases (including her own daughter.)

  2. By Courtney @ Bundle of Wonder on April 13, 2012

    Sarah - as you know, I don’t get much traffic on my blog, but if you would like to do a guest post on my, I would be delighted to help!  My heart and thoughts are with this family.  I can’t imagine how difficult and scary it must be for them.

  3. By Sarah Christensen on April 13, 2012

    Thanks, Courtney (second Courtney, with Harper).  I’ll send you an e-mail.

    Thanks first Courtney too.  I’ve never heard of FundRazr before but I HAVE heard of Camara Cassin, and I’ll pass along the info!

  4. By on April 13, 2012

    I wanted you to know that this story really touched me. I could not image a small child being in extreme pain like that when not enough oxygen is getting to important areas of her little body. My goodness this must be hard for her and her family. I made a donation with the link provided in the post. Thank you Sarah for getting the word out!

  5. By Sarah Christensen on April 13, 2012

    Desiree - THANK YOU so much for donating!!  I know this will help so many families.  Thank you!

  6. By Sara on April 13, 2012

    I had a friend in high school who died of sickle cell anemia, so this cause is near and dear to my heart. I’‘m happy to see you supporting this cause - and yes, what’s the purpose of a blog if to not help others! :) I’d be happy to donate - and spread the word via facebook and a blog post.

  7. By Sarah Christensen on April 13, 2012

    Sara - Thank you!  I am so sorry to hear about your friend.

  8. By Alicia S. on April 16, 2012

    I’m in for a guest post. Scarlett was only in the hospital for about 3 weeks and it was one of the most excruciating experiences of my life—even after we knew that she was on a fast road to recovery (up until recently I couldn’t even look at the pictures of her between 10 and 11 months) … It’s so small in comparison, but now that everyone in our family is healthy, it’s very difficult for me to read through stories of families who aren’t. I’m glad I did, though, and I hope that this can get around to everyone it needs to.

    I wish I lived close enough to attend the event. Our sister in law threw a small event at Friendly’s this winter to help raise money for us while my husband was out of work after his accident. Just having so many friends and family gather together to show their love and support for him was more touching than I can explain. We’re happy to donate. Please tell her family that our thoughts and prayers are definitely going out to little Jordin.

  9. By carolina on April 17, 2012

    just sent you an email regarding the above. let me know your thoughts whenever you have a moment. XoXo

  10. By on April 19, 2012

    Jordan’s Journey is something new to the world of ancestry. It’s a genealogical mashup incorporating photography, writing, design, research. Thanks mate. :)

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